Osteogenesis Imperfecta (OI) is a complicated, variable, and rare disorder. It’s primary feature is a fragile skeleton, but many other body systems are also affected. Originally founded in 1972, the COIS (Canadian Osteogenesis Imperfecta Society) has recently been revitalized and is committed to building a strong national community and becoming a go-to resource for information, education, and advocacy on topics related to OI. The goals of the Canadian Osteogenesis Imperfecta Society are to:
- Provide education and support to persons with OI and their families
- Increase awareness and knowledge about OI within the greater Canadian community
- Support and fund research into the treatment, care, and management of OI
- Collaborate with other OI communities around the world